Nervous - Addendum

Reed's appointment yesterday went well. He will be referred to see a pediatric urologist. The general surgeon with met with yesterday said this would be their area
of expertise so they will know what is the best course of action to take.
They were concerned about the mass being attached to the adrenal glad but this is not the case. It is more acting as a hat to the kidney which they say may potentially still have some slight function or it will not function at all. They also noted his right kidney is bigger than average (it mesasure in the 95 percentile) and he said this is because it is overcompensating for the left one and will probably get bigger. Now it's just waiting for the Urology Clinic to get a hold of us and meet with them and see what they have to say. They did try to get us into the clinic while we were there yesterday but our appointment was later in the day (we met with the general surgeon around 4pm) and the clinic was closed for the day. It would have been nice to see them all in the same day but c'est la vie!

Nervous

Reed has his first appointment at Sick Kids today. He is going in to have an ultrasound and then meet with a general surgeon. I'm really feeling nervous about
these said appointments. I really mostly nervous about hearing what exactly is going on in the poor little guys abdomen.
I haven't talked much about it because there really has been much to say but here is a little background info.
When I was pregnant, they found a fibroid on my uterus. Because I was planning a homebirth, I was sent for a follow up ultrasound to make sure it hadn't grown so I could proceed with my homebirth. When I went for my ultrasound they couldnt' see it anymore. I felt a little sketchy about this so asked for a Level 2 ultrasound. My reason for this is fibroids prevent your uterus from contracting as it should and can lead to increased bleeding and I didn't want this to happen to me at home should they had make a mistake.
Fast forward to my Level 2 ultrasound and they find fluid in the baby's left kidney. We meet with a pediatrician. He tells us Reed has a blockage/narrowing of the ureter (it's called UPJ), his kidney is very damaged and not fully developed and what little kidney is there will fade away. End result, he will have one functioning kidney which is not a problem and all should be well. He recommended Reed have his own ultrasound anytime after he is a week old.
At 3 weeks old, Reed went for his ultrasound. Long story about getting the results but I eventually hunted them down and had them at the Dr's office for his 2 month check up.
As it turns out from his ultrasound, he does indeed have a full second kidney however it is being pushed down by a mass that has grown in his abdomen. It's a good size. I don't know the exact dimensions but I can feel it and you can actually kind of see around about where it is because it sticks out ever so slightly.
We have no idea what it is. This is what freaks me out and makes me nervous. I can think all of the worse case scenarios but I don't want to go there. Needless to say, we are consulting with a general surgeon because it's going to have to be removed. Let's all cross our fingers and say a prayer it's benign.